Learn about your illness

ADD
ALS
Alzheimer's
Aphasia
Ataxia
Autism
Bell's Palsy
Benign Essential Belpharospasm
Brain Tumor
Brain Injury
Cerebral Palsy
Dystonia
Epilepsy
Guillain-Barre
Headache/Migraine
Huntington's Disease
Multiple Sclerosis
Muscular Dystrophy
Myasthenia Gravis
Narcolepsy
Neurofibromatosis
Neuropathy
Obsessive-Compulsive Disorder
Pain Management
Parkinson's Disease
Progressive Supranuclear Palsy
Restless Leg Syndrome
Sleep Disorders
Spasmodic Dysphonia/Torticollis
Stroke
Tinnitus
Tremor
Trigeminal Neuralgia
Tuberous Sclerosis
Wilson's Disease
General Neurology

Attention Deficit Disorder

Children and Adults with ADD (CHADD)
8181 Professional Place
Suite 221
Landover, MD 20785
Phone: 301.306.7070
Email: call_center1@chadd.org
CHADD is a non-profit parent-based organization formed to better the lives of individuals with attention deficit disorder and those who care for them.

ALS

ALS Association
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104
Phone: 888.949.2577
Email: hope@alsa-national.org
The ALS Association is the only national not-for-profit voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis (often called Lou Gehrig's disease).

Alzheimer's Disease

Alzheimer Society
20 Eglinton Ave. W., Ste. 1200
Toronto, Ontario M4R 1K8
Canada
Phone: 416.488.8772
Toll Free: 1.800.616.8816 (valid only in Canada)
Email: webmaster@alzheimer.ca
Here you'll find information on the Alzheimer Society, the disease, care, research, news, events and more.

Alzheimer's Association
National Headquarters
919 N. Michigan Ave.
Suite 1000
Chicago, IL 60611-1676
Phone: 312.335.8700
Toll Free: 800.272.3900
Dedicated to researching the prevention, cures and treatments of Alzheimer's disease nationwide.

Alzheimer's Disease Education and Referral (ADEAR Center)
P.O.Box 8250
Silver Springs, MD 20907-8250
Phone: 800.438.4380
Email: adear@alzheimers.org
This site provides information on Alzheimer's disease research, diagnosis, Treatment, drugs, and clinical trials, and FederalGovernment programs and resources. The Center is a service of the National Institute on Aging (NIA) . The NIAis one of the National Institutes of Health under the U.S. Department of Health and Human Services

Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
Phone: 415.434.3388
Fax: 415.434.3508
Email: info@caregiver.org
Welcome to the website for Family Caregiver Alliance, the premier support organization for caregivers. Here you'll find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS and other disorders and long-term care concerns. Our site has wonderful features for families, caregivers, professionals, policy makers and the media.

Aphasia

National Aphasia Association
156 5th Ave-Suite 707
New York, New York 10010
Phone: 800.922.4622
The National Aphasia Association is an organization dedicated to promoting the care, welfare, and rehabilitation of those with aphasia through public education and support of research. The mission of the NAA is to stimulate the development and utilization of resources to help meet the needs of people with aphasia and their families.

Ataxia

National Ataxia Foundation (NFA)
2600 Frenbrook Lane - Suite 119
Minneapolis, MN 55447
Phone: 612.553.0020
Email: naf@mr.net

Autism

Autism Research Institute
4182 Adams Avenue.
San Diego, Ca 92116
Phone: 916.281.7165

Bell's Palsy

American Academy of Otolaryngology- Head and Neck Surgery
One Prince Street
Alexandria, VA 22314-3357
Phone: 703.836.4444
Email: webmaster@entnet.org
Offer lists of patient leaflets and /or geographical list of physicians.

Benign Essential Belpharospasm

Benign Essential Belpharospasm Research Foundation, Inc. (EBRF
P.O.Box 12468
Beaumont, TX 77726-2468
Phone: 409.832.0890
Email: bebrf@ih200.net
Referral services, local chapters, support groups, audio/visual materials.

Brain Tumor

American Brain Tumor Association (ABTA)
Suite 146
2720 River Road
Des Plaines, IL 60018
Phone: 847.827.9910
Toll Free: 1.800.886.ABTA (1.800.886.2282)
Email: info@abta.org
ABTA funds brain tumor research and provides information to patients to make educated decisions about their health care. The ABTA offers printed materials about research and treatment of brain tumors, and provides listings of physicians, treatment facilities, and support groups throughout the country. A limited selection of Spanish-language publications is available.

National Brain Tumor Foundation
414 Thirteenth Street, Suite 700
Oakland, CA 94612-2603
Phone: 510.839.9777
Toll Free: 1.800.934.CURE (2873)
Fax: 510.839.9779
Email: nbtf@braintumor.org
NBTF is a national not-for-profit health organization dedicated to providing information and support for brain tumor patients, family members, and healthcare professionals, while supporting innovative research into better treatment options and a cure for brain tumors.

Children’s Brain Tumor Foundation
274 Madison Avenue,
Suite 1301,
New York, New York 10016
Phone: 212.448.9494
A resource guide for parents of children with brain and spinal cord tumors.

Brain Injury

Acquired Brain Injury/Traumatic Brain Injury Information Project
Welcome to the ABI/TBI Information Project. In conjunction with the TBI- SPRT E-Mail List and the Sasquatch ABI/TBI Gopher, this area is dedicated to providing information on brain injury without preference to any particular person, thought, theory or belief. At this point in time it exists because of the work of Len Burns, owner of the St. John's Traumatic Brain Injury Support list (TBI-SPRT), Dena Taylor, Executive Director of The Perspectives Network and Jeff Northon, site co-administrator.

Brain Injury Association Inc.
105 North Alfred Street
Alexandria, VA 22314
Helpline: 800.444.6443
Phone: 703.236.6000
Fax: 703.236.6001
To find your nearest Brain Injury Association State Office or Affiliate visit:
www.biausa.org/States.htm
The mission of the Brain Injury Association is to create a better future through brain injury prevention, research, education and advocacy. Their site offers listings of publications, conferences, programs, support groups and more. They also have a site dedicated to children.

Brain Injury Center
4229 Bardstown Rd. #330
Louisville, Kentucky 40218
Phone: 502.493.0609
Toll Free: 800.592.1117
Fax: 502.499.8995
Complete information on brain injuries, whether they're caused by accidents, stroke, infection or tumors. The resources here are intended for laypeople.

Brain Trauma Foundation
523 Esat 72nd Street
New York, NY 10021
Phone: 212.772.0608 Fax: 212.772.0357

National Aphasia Association
156 5th Ave-Suite 707
New York, New York 10010
Phone: 800.922.4622
The National Aphasia Association is an organization dedicated to promoting the care, welfare, and rehabilitation of those with aphasia through public education and support of research. The mission of the NAA is to stimulate the development and utilization of resources to help meet the needs of people with aphasia and their families.

Cerebral Palsy

The Arc of the United States
(formerly Association for Retarded Citizens of the United States)
500 East Border Street, Suite 300
Arlington, Texas 76010
Voice: 817.261.6003
Fax: 817.277.3491
TDD: 817.277.0553
Email: thearc@metronet.com
The Arc is the country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families.

United States Cerebral Palsy Athletic Association Home
25 W. Independence Way
Kingston, RI 02881
e-mail: uscpaa@mail.bbsnet.com
Phone: 401.874.7465
Our overall purpose is designed to provide both individualized sports training and competitive opportunities for atheletes with cerebral palsy, or other related challenges, such as traumatic brain injuries or strokes.

Dystonia

Dystonia Medical Research Foundation (DMRF)
One East Wacker Drive #2430
Chicago, IL 60601-2001
Toll Free: 800.377.DYST
Phone: 312.755.0198
Email: dystonia @dystonia-foundation.org

Epilepsy

The Epilepsy Foundation®
(formerly the Epilepsy Foundation of America)
4351 Garden City Drive,
Landover, MD 20785
Local Phone: 301.459.3700
Toll Free: 800.EFA.1000
Fax: 301.577.4941
TTY: 800.332.2070
Email: webmaster@efa.org
This is a national organization that works for people affected by seizures through research, education, advocacy and service.

Guillain-Barre Syndrome

Guillain-Barre´ Syndrome Foundation International
P.O. Box 262
Wynnewood, PA 19096
Phone: 610.667.0131
Fax: 610.667.7036
Email: gbint@ix.netcom.com

Available services include:

  • Visits to patients by recovered persons
  • Comprehensive booklet, "GBS, An Overview for the Layperson"
  • Poster, announcing services
  • Patient assistance by local chapters
  • List of chapters worldwide
  • Newsletter
  • Research Funding
  • International Educational Symposia for the medical community and general public

Headache/Migraine

American Council for Headache Education (ACHE)
19 Mantua Road
Mt. Royal, NJ 08061
Phone: 856.423.0258
Fax: 856.423.0082
Email: achehq@talley.com
The American Council for Headache Education (ACHE) is a nonprofit patient-health professional partnership dedicated to advancing the treatment and management of headache.Our goals are to empower headache sufferers through education, and to support them by educating their families, employers, and the public in general. We advocate individualized treatments, which combine the best of traditional medicine, alternative medicine, drug, and non-drug therapies.

National Headache Foundation
428 W. St. James Place, 2nd Floor
Chicago, Illinois 60614-2750
Toll Free: 1.888.NHF.5552
Phone: 312.388.6399 Our World Wide Web Headache Information Center offers membership availability, topic sheets for specific headache conditions, a list of educational materials for purchase, information about headache support groups, sample articles from the NHF Head Lines, our award-winning bi-monthly newsletter.

Huntington's Disease

Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
Phone: 415.434.3388
Fax: 415.434.3508
info@caregiver.org
Welcome to the website for Family Caregiver Alliance, the premier support organization for caregivers. Here you'll find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS and other disorders and long-term care concerns. Our site has wonderful features for families, caregivers, professionals, policy makers and the media.

Huntington's Disease Society of America
158 West 29th Street, 7th Floor
New York, NY 10001-5300
Phone: 212.242.1968
Toll Free HD Information Line: 1.800.345.HDSA
Email: sarcher@hdsa.org
HDSA's mission is to:

  • Promote and support research to find a cure for HD
  • Help those affected by the disease and their families Educate the public and health care professionals about HD

Multiple Sclerosis

Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
Phone: 415.434.3388
Fax: 415.434.3508
Email: info@caregiver.org
Welcome to the website for Family Caregiver Alliance, the premier support organization for caregivers. Here you'll find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS and other disorders and long-term care concerns. Our site has wonderful features for families, caregivers, professionals, policy makers and the media.

Multiple Sclerosis Association of America (MSAA)
National Headquarters
706 Haddonfield Road
Cherry Hill, NJ 08002
Toll Free: 1.800.LEARN.MS
Phone: 609.488.4500
The MSAA offers an educational video for newly diagnosed individuals.

National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
Fax: 212.986.7981
Phone: 212.476.0426
Toll Free: 800.344.4867 (FIGHT MS) Email: info@nmss.org
The National Multiple Sclerosis Society is dedicated to ending the devastating effects of Multiple Sclerosis (MS). Acquire news updates, information about the organization, local resources and MS links.

Muscular Dystrophy

Muscular Dystrophy Association
3300 east Sunrise Drive
Tucson, AZ 85718
Toll Free: 800.572.1717
The Muscular Dystrophy Association is the source for news and information about neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families.

Myasthenia Gravis

Myasthenia Gravis Foundation of America (MGF)
123 W. Madison Street
Suite 800
Chicago, IL 60602
Phone: 312.853.0522 or 800.541.5454
Fax: 312.853.0523
Email: myasthenia@myasthenia.org
This national volunteer health agency seeks to find a cure for myasthenia gravis and related disorders of the neuromuscular junction and to help people affected by them. Their site provides news, research updates, patient-service information and links.

Narcolepsy

American Academy of Sleep Medicine
6301 Bandel Road NW, Suite 101
Rochester, MN 55901
Phone: 507.287.6006
Fax: 507.287.6008
Email: info@aasmnet.org

Neurofibromatosis

Neurofibromatosis, Inc.
8855 Annapolis Rd. - Suite 110
Lanham, MD 20706-2924
Toll Free: 800.942.6825
Phone: 301.577.8984
Fax: 301.577.0016
Email: nfincl@aol.com
NF, Inc. is an organization made up of independent state and regional chapters, providing support and services to NF families.

Neuropathy

Charcot-Marie-Tooth Association
2700 Chestnut Street
Chester, PA 19013-4867
Phone: 610.499.9264
610.499.9265
Toll Free: 1.800.606.CMTA (2682)
Fax: 610.499.9267
Email: CMTAssoc@aol.com
The CMTA is a nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT.

The Neuropathy Association
60 E. 42nd Street, Suite 942
New York City, N.Y. 10165.
Phone: 212.692.0662
Email: info@neuropathy.org
The Neuropathy Association is a public, nonprofit organization which was established by people with neuropathy and their families or friends to help those who suffer from disorders that affect the peripheral nerves.

Obsessive-Compulsive Disorder

Obsessive-Compulsive Foundation (OCF)
337 Notch Hill Road
North Branford, CT 06471
Phone: 203.315.2190
Fax: 203.315.2196
Email: info@ocfoundation.org
OCF funds research, conducts annual membership conferences, publishes a bi-monthly newsletters, provides a free inquiry packet with information on treatment providers, support groups and other materials.

Pain Management

National Foundation for the Treatment of Pain
1330 Skyline Drive #21
Monterey, CA 93940
Phone: 831.655.8812
Fax: 831.655.2823
The National Foundation for the Treatment of Pain is a not-for-profit organization dedicated to providing support for patients who are suffering from intractable pain, their families, friends and the physicians who treat them.

American Chronic Pain Association, Inc. (ACPA)
PO Box 850
Rocklin, CA 95677
Phone: 916.632.0922
Fax: 916.632.3208
Email: ACPA@pacbell.net ACPA Mission Statement:
* To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
* To raise awareness about issues of living with chronic pain among the health care community, policy makers, and the public at large.

Parkinson's Disease

American Parkinson Disease Association
1250 Hylan Blvd. - Suite 4B
Staten Island, Ny 10305
Toll Free: 800.223.2732
Phone: 718.981.8001
Email: info@apdaparkinson.com

National Parkinson Foundation, Inc.
1501 NW 9th Ave
Bob Hope Road
Miami, FL 33136-1494
Toll Free: 1.800.327.4545
Fax: 1.305.548.4403
Email: mailbox@npf.med.miami.edu
The organization supports research; conducts clinical trials; and provides physical, occupational, speech and neuropsychological therapies. Learn about Parkinson's disease-related news and events. The online library also holds publications and articles.

Parkinson's Disease Foundation
710 West 168th Street
New York, NY 10032-9982
Toll Free: 800.457.6676
Phone: 212.923.4700
Email: info@pdf.org
Educational Office (312)733-1893
The Foundation provides information about Parkinson's disease itself as well as related organizations, research centers and events. You can also read the latest Parkinson's news or join the online email list.

Parkinson's Action Network
840 Third Street
Santa Rosa, CA 95404
Toll Free: 800.850.4726
Phone: 707.544.1994
Fax: 707.544.2363
Email: info@parkinsonsaction.org
The Parkinson's Action Network was founded in 1991 with a mission to provide a voice for the Parkinson's community. Since that time, the Network's central objective continues to be to promote a level of research support sufficient to produce effective treatments and a cure.

Progressive Supranuclear Palsy

Society for Progressive Supranuclear Palsy, Inc (SPSP)
(800) 457-4777
Suite 515, Woodholme Medical Building
1838 Greene Tree Rd.
Baltimore, MD 21208
Fax: 410.486.4283
Email: spsp@erols.com
The goal of this website is to bring current information on progressive supranuclear palsy (PSP) to persons with PSP, their families, and their caregivers.

Restless Leg Syndrome

Restless Legs Syndrome Foundation
4410 19th Street NW
Suite 201
Rochester, MN 55901-6635
Phone: 507.287.6465
RLSFoundation@rls.org
The Restless Legs Syndrome Foundation is a nonprofit 501(c)(3) agency that provides information about RLS; helps develop support groups; supports research to find better treatments and, eventually, a definitive cure; educates physicians and patients about RLS; and publishes a quarterly newsletter known as NightWalkers.

Sleep Disorders

American Sleep Apnea Association
1424 K Street NW
Suite 302
Washington, DC 20005
Phone: 202.293.3650
Fax: 202.293.3656
Email:asaa@sleepapnea.org
The American Sleep Apnea Association is dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness, the ASAA A.W.A.K.E. Network of voluntary mutual support groups, research, and continuous improvement of care.

Center for Narcolepsy
Sleep Disorders Clinic
Stanford University Medical Center
401 Quarry Road
Stanford, CA 94305-5730
Phone: 1.650.723.6601
The Center for Narcolepsy is part of the Department of Psychiatry and Behavioral Sciences and has published more than 100 articles on narcolepsy. It is the world leader in the search for the cause of narcolepsy. Several hundred patients with the disorder are currently treated at the Center or participate in various research protocols. A colony of Dobermans affected with the disorder is also bred and maintained to study narcolepsy and search for the canine narcolepsy gene (see Research).

National Sleep Foundation
1522 K Street, NW
Suite 500
Washington, DC 20005
Fax: 202.347.3472
Email: nsf@sleepfoundation.org
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving public understanding of sleep and sleep disorders, and by supporting public education, sleep-related research, and advocacy.

SleepChannel
SleepChannel™ is developed and monitored by leading sleep specialists. You can always be assured of finding the most up-to-date, medically accurate information available on the web.
SleepChannelForum
In our forums, your forum questions are answered by board certified physicians, and you can respond to the concerns of other browsers.
Sleep Videos
Right on your own computer, view videos that explain problem sleep conditions and surgical procedures.
Live chats!
During our scheduled topic chats, you can communicate directly with one of our physicians. Or chat with other browsers any time. Share your ideas and concerns and learn about how others have learned to cope with their conditions.
Resources
Connect with local and national organizations to find out about ongoing efforts to raise awareness, enhance quality of life, and advocate for prevention, treatment, and cures for a variety of sleep-related conditions.

Spasmodic Dysphonia/Torticollis

National Spasmodic Dysphonia Association (NSDA)
One East Wacker Drive
Suite 2430
Chicago, IL
USA 60601-1905
Phone: 312.755.0198
Toll Free: 800.377.DYST
Fax: 312.803.0138
Email: dystonia@dystonia-foundation.org
Dedicated to serving the needs of persons affected with dystonia and their families, the Foundation has grown from a small family-based foundation to a member-driven organization of close to 25,000 persons.

National Spasmodic Torticollis Association (NSTA)
(800)-HURTFUL
(714) 378-7837
9920 Talbert Avenue, #233
Fountain Valley, CA 92708
Email: nstamail@aol.com
The National Spasmodic Torticollis Association (NSTA), a California nonprofit organization, provides support, referrals and information for patients and family members living with ST. The organization offers a variety of valuable services.

Stroke

American Heart Association
National Center
7272 Greenville Ave
Dallas, TX 75231
Phone: 214.373.6300
Toll Free: 800.AHA.USA.1
Stroke Connection: 800-553-6321
Dedicated to researching the prevention, cures and treatments of Alzheimer's disease nationwide.

National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke
31 Center Drive MSC 2540
Building 31 Room 8A06
Bethesda, MD 20892-2540
Phone: 301.496.5751
Fax: 301.4002.2186
Patients, clinicians and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.

National Stroke Association
96 Inverness Drive East
Suite I
Englewood, Colorado, 80112-5112
Phone: 303.649.9299
Fax: 303.649.1328
Toll Free: 1.800.strokes or 1.800.787.6537
National health care organization provides site for stroke survivors and their families detailing stroke prevention, treatment, rehabilitation and research.

Tinnitus

American Tinnitus Association
P.O Box 5
Portland, OR 97207-0005
Toll Free: 800.634.8978
Email: tinnitus@ata.org
Education - Advocacy - Research - Support..."To promote relief, prevention, and the eventual cure of tinnitus for the benefit of present and future generations"

Tremor

International Tremor Foundation
7046 W. 105th St
Overland Park, KS 66212-1803
Phone: 913.341.3880
Fax: 913.341.1296
Email: IntTremorFnd@worldnet.att.net

Trigeminal Neuralgia

Trigeminal Neuralgia Association (TNA)
P.O. Box 340
Barnegat Light, NJ 08006
Phone: 904.779.0333
Fax: 904.779.7681
Email: Tnainfo@aol.com
TNA is a nonprofit, tax-exempt organization founded in 1990 by individuals who had been directly affected by the pain of trigeminal neuralgia, as patients or as family members of a patient.

Tuberous Sclerosis

National Tuberous Sclerosis Association (NTSA)
8181 Professional Place
Suite 110
Landover, MD 20785
Phone: 301.459.9888
Toll Free: 800.225.6872
Email: ntsa@aol.com

Wilson's Disease

National Center for the Study of Wilson's Disease (NCSWD)
432 West 58th Street
Suite 614
New York, NY 10019
Phone: 888.638.6928
Fax: 212.523.8708

General Neurological Resources

American Academy of Neurology
1080 Montreal Avenue
St. Paul, Minnesota 55116
Phone: 651.695.1940
Email: wen@ann.com

Center for Genetic Studies In Inherited Neurological Disorders
Division of Neurology - Box 2900
Bryan Research Building
Duke University Medical Center
Durham, NC 27710
Toll Free: 800.283.4316

Dana Alliance (CharlesA. Dana Fund)
745 Fifth Avenue
Suite 700,
New York, NY 10151.
Email: :dabiinfo@dana.org
The Charles Dana Foundation / The Dana Alliance for Brain Initiatives At this site you will find extensive information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well as material of interest to any one concerned about brain diseases and disorders and about innovative reforms that strengthen early education.

National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Patients, clinicians and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.

The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)

1010 Wayne Avenue, Suite 800
Silver Spring, MD 20910
Toll Free: 800.346.2742 (V)
Phone: 301.562.2400 (V)
301.495.5626 (TT)
Fax:301.562.2401
One of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the Internet. NARIC's literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.

National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone: 202.205.8134
TTY: 202.205.9433
(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages.